Welcome to a new mini-series on the blog, The A-E-I-O-U’s of Accessibility.
I’ve started this series because I want to delve into a few of the fundamental ways the able-bodied community can begin to help build an equal and accessible world for people of all abilities. So often, it can feel as though the disabled community is fighting this battle alone,, without the support of our able-bodied allies.
But sometimes, I think it’s because they just don’t know where to start.
That’s what I want to do in this series, give you five ways to start and to become that ally.
But why did I choose to use vowels?
Because in an alphabet of 26 letters, there are only five vowels—five vowels that are essential to the mechanics of communication. They are woven into the very fabric of language, and I cannot think of a single, English word without one.
Likewise, I believe that this series discusses things that are essential to the building of that equal and accessible world that I want to live in, and that we can only make happen together.
So let’s jump right in, with the first installment in our series: A Is For Ask.
Ask Because You Care
Be honest with me for a minute: When the cashier says, “how are you doing today?” do you return the question, and mean it?
I know I don’t. At least not as often as I’d like to. I’m usually in too much of a rush, feeling tired, or just “not in the mood to human today.” And I always leave feeling a little guilty.
Could I not have taken five seconds out of my day to ask another person how they’re doing? How much energy would I really have expended caring about their answer?
Definitely not enough to complain about.
But already, I’m sure some of you may be thinking, “But Rhianna, it’s just being polite. They don’t want to hear your life story.”
And you’d be right on both counts. Often times, it is simply out of respect that the “how are you” is asked, and most people don’t want to hear every detail of a stranger’s day.
But what do we do about the one person that needs to be heard? Who needs to be asked? Who needs to feel like someone cares about them? And since we don’t know who that person is, isn’t it our responsibility to give each person we encounter that opportunity?
Now, by saying this, I’m not implying that we need to ask every passerby on the street how they’re doing and dive into a detailed analysis of their personal life. Nor am I insinuating that we must speak to every person to care about them. Caring goes far beyond just verbal; opening doors for someone with their hands full, standing on the bus to let the elderly lady sit down, or simply giving a smile as you pass by can go a long way to show someone you care in one simple act of kindness.
Or simply being… yourself.
I remember, during my last year of university, I became utterly exhausted of the insincerity of the “how are you” exchange. I could almost taste the practiced, automatic question and answers, and I wanted to change it. Since I couldn’t force anyone else to be genuine in their answers, I committed to being more honest in mine.
I was always the first student to arrive for my History of the English Language class, and Jeremy was always next. When he entered and said, “Morning Rhianna, how are you today?” I took a breath.
“I’m…” I paused. “I just am today.” I sighed. It was a tough morning and I was overloaded by everything I had to get done. “How are you doing?”
Jeremy’s reply surprised me. “I just am, too.” His voice sounded tired, a stark difference from his cheerful good morning.
“I know,” I said quietly. “We’ll make it.”
That’s the only conversation I had with Jeremy throughout my four-year degree and dozens of shared English literature classes together. But to this day, I can’t help but wonder if, because I dared to be genuine in my answer—even though it wasn’t the most optimistic answer—it gave him permission to drop the “fine” facade and be genuine himself.
I wonder if he could tell that I cared.
After all, Jeremy was a person with a story that, whether I knew its content or not, was worthwhile and valuable. If I could show that I cared about him in one simple exchange, then for me, it was worth it.
If we don’t take the time to ask, we’ll never know the answer. And they’ll never know we cared.
Ask Because You Believe
If we never ask the question, we’ll never get the answer.
But what do we do when we get that answer, especially if the answer isn’t something we want to hear?
It saddens me to say that what I’m about to describe is not an uncommon occurrence in my life and in the lives of many other disabled individuals. Living with a disability comes with numerous challenges that are just par for the course—limited access to gainful employment, denied access to public establishments because of a service dog, adaptive equipment that’s too expensive for the majority to purchase, attitudes that treat us as inferior, and much more. But there’s one that hurts more than any of the others, because it cuts straight to the core of who I am.
And that is when my lived experience of disability is not believed.
When confronted with the sometimes negative reality of my life with a disability, I’ve heard a range of responses:
“We have good intentions.”
“You can’t blame us for not knowing.”
“You should just be grateful for what you have.”
“Why is it such a big deal?”
Why is it such a big deal?
This is why:
Because a response like this doesn’t dismiss the practical struggles of the disability, but it dismisses the real, raw struggles of the disabled person.
Why ask a question if you’re unwilling to accept the answer? Why take the time to invest in our stories if your response invalidates what we’ve shared? Why ask about the challenges we face with systemic inequality and discrimination if you’re going to defend the actions of the ones who discriminate against us?
This, my friends, is why it’s a big deal. And it’s also why I’ll keep making it a big deal. Because I’m not talking only about accommodations or adaptations or a theory to be debated.
I’m talking about the lives of people you love—your neighbours, your friends, your families.
It’s our lives.
It’s my life.
And you can’t guarantee that it will never be yours, either.
If we don’t take the time to ask, we’ll never know the answer. And they’ll never know we cared.
And if you never take the time to listen, we’ll never know you heard us.
And we’ll never make progress toward equality and accessibility. That will only happen once we stop segregating the able-bodied from the disabled and start asking, “What can we do to make this a better world for all of us?”
You broke the “i’m fine” habit in a healthier way than I did. In college I ran a very skewed personal experiment. When people would ask how I was I[‘d answer “I’m fine’ in a very depressed voice, or “I’m terrible!” in a chipper voice. When they responded as if I’d said “I’m fine” in a chipper voice I chalked it up to humans not paying attention, even though. I’d used my vocal tone to set them up for failure. I love how you gave Jeremy a chance to do things right, and in so doing, gave him the space to acknowledge his own story.