A BOY BROKE MY WHITE CANE AND DIDN’T EVEN NOTICE — A MINI MEMOIR

A true story from my middle school days, I’m sharing the following story because I want to raise awareness of a very real issue that many people don’t consider:

Never touch a disabled person’s mobility tool. Whether that be a guide dog, a cane [as in this story], a wheelchair or any other type of mobility aid, it is for no one’s use except by the person it’s intended to support. And that is because it is not simply a piece of equipment or technology, but it is their access, their freedom, independence, mobility, safety and their means of communicating with and moving through the world.

But when that freedom and independence is compromised, it can wreak havoc and put that person in challenging and potentially dangerous situations. And more importantly, it takes away their autonomy.

There’s the moral of the story, even though we haven’t gotten to the story yet. So, without further ado…


I’m in the seventh-grade wing of my middle school, the halls blissfully clear and quiet now that class is in session. I’m on my way to the resource room, where I frequently work on projects one-on-one with my braillist. It’s just easier sometimes, especially in math and science when I need more specific adaptations or explanations of sighted concepts that are hard to understand. I don’t mind; anything to get out of a classroom of kids I’m not friends with.

The resource room is on the opposite side of the school, up a flight of stairs, down a ramp and past several twists and turns. But I know it forward and backward. I can walk it with my eyes closed, I think to myself, and I smile sardonically at my own blind joke.

And it’s a good thing, too, since I’m still in the hall by Mrs. George’s classroom when a boy slams into me, nearly knocking me to the ground. Where did he come from? There was nothing but a split second of pounding footfalls before the impact.

But before I can say anything, he’s gone.
I regain my balance, and notice that the quiet of the hall has returned as quickly as it was interrupted. I shake it off as best I can and grab my cane to begin walking to the resource room. But something is wrong. Very, very wrong.

The end of my cane, which has a rolling tip on it that rolls smoothly as I sweep my cane ahead of me from right to left, isn’t there. Instead of the smooth, bumping sound reverberating from the linoleum, there’s only an eerie nothingness. The tip isn’t touching the ground. It’s then that I reach forward, trailing my hand from the rubber grip top of the cane downward.

And then I see it. My cane is broken. Snapped in two like a twig. A carbon graphite twig. The lower half hangs limply from the string which is normally thread invisibly through the cane, holding it together.

I can’t use my cane like this! It’s physically impossible. And without a cell phone, or anyone in the hall, and no way to tell my braillist what’s happened, I take a step forward and am thankful I was taught how to keep myself safe as a kid before I got a cane. I hold my cane in the crook of my arm, and put one hand up to protect my face and the other in front of my belly button, and I start walking.

I shuffle through the halls–careful not to lift my foot in case of missing a drop off and POOF, down I go–up the stairs, down the ramps, and listen for the echo of the openness where the hallways intersect, and turn. I don’t pass anyone which I’m grateful for because I know this must look weird. What’s the blind girl doing now?

I make it to the resource room unscathed, my broken cane tucked under my arm. I work on my science project, then my braillist guides me out to the parking lot to meet my mom when the bell rings.

Then, we buy a new cane.

A SILVER DOLLAR FOR DISABLED MARRIAGE, PART FOUR: YOU SAY ENTITLED, I SAY EQUALITY

Please read A SILVER DOLLAR FOR DISABLED MARRIAGE, PART THREE: MOTHER MINISTRY, HER CHILDREN, AND THEIR CO-DEPENDENT RELATIONSHIP before continuing.

”Give thanks in all circumstances; for this is the will of God in Christ Jesus for you.” – I Thessalonians 5:18

Corrie ten Boom, and her sister, Betsie, put this verse into practice in the very direst of circumstances—while in a Nazi-controlled concentration camp in World War II. Read her story in her book, The Hiding Place, or listen as a dramatized radio drama by Focus On The Family.

How terrible it would be to find even one thing to be thankful for in a concentration camp! I’m continually encouraged by Corrie and Betsie’s attitude of thankfulness and I try (and often fail) to adopt it for myself.

On the inaugural day of a week-long girls getaway, it became my mantra as everything seemed to be going wrong. From twisting my ankle, taking transit in the rain for seven hours with multiple missed or late buses, losing my credit card, winding up in emergency for my foot, and getting excruciating menstrual cramps, I repeated “give thanks in all circumstances” through the day. And though it didn’t change my circumstances, it changed my attitude.

Thankfulness can be a tricky concept. Many a disabled person can regale you with experiences where, when trying to explain the challenges they face living with disabilities, they are told to “just be thankful.” That same sentiment echoes in my brain when considering the system that both gives financial support for disabled people in British Columbia, and also takes it away, which, in doing so, puts the disabled person in financial stress. Ironic, isn’t it

But there’s one glaring problem with this response, and it’s this, that in telling a disabled person to be thankful for what they have, you imply that they are entitled if they ask for more.

If we are less than enthusiastic about the amount of income we receive from the Ministry, and even insinuate that the amount should be higher, we are perceived as entitled. If we want more, then we’re dissatisfied with what we have, and maybe even greedy. We expect too much, and think that we’re more deserving than we really are.

But hear me, oh please hear me now: This is not an issue of entitlement, but an issue of equality.

As a disabled person, I’m not being entitled to expect equitable treatment and support.

It is not entitlement to want enough money to supplement my husband’s income that allows us to sufficiently cover our living expenses.

Disabled people are not being given special treatment if they receive disability income support.

And there is one more misconception I’d like to clear up: Disability support is not a handout. It isn’t money given at will so that disabled people don’t have to work. It’s compensation to help sustain us month to month as we search for employment in a society in which it is very challenging for disabled people to obtain. We are not greedy, or lazy, and I’d wager that each individual receiving it would choose not to be reliant on it if they had a choice.

But the fact does remain that many people are in need of it for any number of reasons. And they should never feel shame or embarrassment at being in receipt of this support. It’s been my lifeline for years now, and I don’t know how my life would have unfolded without it.

But should disabled people be thankful for this sum of money that is, at times, laughable, because how does the government deem $375 enough to cover shelter costs for a single person?

Yes. We should be thankful that the Canadian government does provide a system for supporting its disabled citizens. The support we receive keeps many disabled people afloat, and acts as their only source of income. There are places and systems that don’t give, but take from its citizens. So yes, I am very thankful to live in a country that provides for people like me.

But that doesn’t mean we can’t criticize or speak out about its flaws or discriminations. If we keep quiet, nothing will change. And striving towards a positive change is what this series, and this blog, seek to do with each word written. Of course it’s uncomfortable and even hurtful at times, but that is because I’m addressing issues in a flawed world. But nothing will change if we don’t raise our voices.

And this blog is my voice. I hope that through this mini-series, you’ve been able to hear me, and hear not only the words I’ve said but the person behind those words. Because I am not the only one whose reality I have just stripped bare. This is life for many, many Canadians, and though every situation is individual, there is one commonality that binds us: Every disabled person deserves equality.

And my hope is that through more and more disabled people speaking up, we will grow ever closer to achieving it.

A SILVER DOLLAR FOR DISABLED MARRIAGE, PART ONE: WHEN I SAID I DO, THE GOVERNMENT SAID WE DON’T HAVE TO ANYMORE

Important Disclaimers:
Firstly, everything I’m about to share in this post is derived from my own experiences and unique situation. In no way is this a complete or accurate portrayal of every person’s circumstances. However, after speaking with several friends who also receive disability income support as well as broader research, I can confidently say that my situation is not uncommon. But more than the numbers I’ll be sharing through this mini-series, I’m speaking more to the governmental system that provides this service and the attitudes and perceptions therein. Please read with an open mind, and please do your own research if interested, but remember that no matter what you read, on my blog or via another source, nothing can be verified unless it comes directly from the Ministry of Social Development and Poverty Reduction and its employees.
Secondly, I will be referencing the Ministry of Social Development and Poverty Reduction in each post in this series. But for the ease of reading, I will simply refer to it as the Ministry. For further reading, visit the Ministry of Social Development and Poverty Reduction’s Disability Assistance page.


Getting married in British Columbia is synonymous with financial hardship for people with disabilities. And I, as a fully blind woman, was all too aware of this as soon as my partner slipped the ring onto my finger. Our six-month engagement was not only a countdown to our becoming husband and wife, but also to the start of a bleak and downward turn for our financial situation that required as much, if not more, planning than our wedding.

Here are the facts of what we were facing:

  • A single person receiving disability income from the Ministry can earn up to $15,000 before their disability payments get cut, dollar for dollar.
  • When a disabled person receiving disability income gets married, that household can earn up to $18,000 cumulatively before their disability payments get cut, dollar for dollar.
  • The payments reset each spring and the client receives monthly support, but only until their income threshold [$15,000/$18,000] is met.

What did this mean for my husband and I? First, let’s look at this in a broader scope.

At the time of this writing in May 2022, minimum wage in British Columbia is $15.20 per hour. And if you dare to follow my less-than-exemplary math skills, let’s find out how much a full-time job at minimum wage turns out to be:

  • $15.20 per hour x 40 hours per week = $608
  • $608 per week x 4 weeks = $2,432
  • With a month’s income as $2,432, and using this income tax calculator the net income that is brought home is $1,851.

With one partner earning $1,851 at minimum wage, it will take an estimated seven months before their income threshold is met and the income support for the disabled partner is cut off for the remainder of the year. But many factors can affect this. What if the non-disabled partner works a job that pays higher than minimum wage? What if they receive a promotion or work a second job? What if the disabled partner has a job as well? It simply means that the income threshold will be met sooner and each dollar earned is one less that the disabled partner can receive from the Ministry.

And I’d be remiss not to mention that the income earned from the Ministry is less than that of minimum wage. And pardon my bluntness, but particularly in this province and the current economic situation, how is anyone supposed to make it as a single-income household? Rent is extortionate depending on the region in which you live, but prices are rising everywhere. Food and fuel are going up, and being disabled has its own costs—adaptive equipment, service animals, medical expenses, etc. It’s hard for anyone. And it’s under these circumstances that the government deems it appropriate to cut a disabled person’s income while they are already earning below minimum wage.

So for an average, newlywed couple without any financial advantages—you know, normal people—this means my husband and I are only able to receive my disability income for seven months, unless I’m able to get work and thus, reach the limit in less time. Any financial success we may come upon, every dollar we earn between the two of us, is one less dollar we won’t have once we reach $18,000.

But the most disheartening part of all of this is that getting married is the cause for these financial losses. When my husband and I first delved into the realities of what we had to prepare for, I sat at the kitchen island and cried. It wasn’t fair. Why was I being punished for finding love? Simply because I was getting married, the government felt that I didn’t need the financial support anymore. Was I supposed to marry rich just because I’m disabled? Sorry, but I didn’t get that memo.

Was I such a burden that even the government didn’t care to support me and help me thrive in our predominantly able-bodied society anymore? Could they not wait until their burden was shuffled off onto her husband to deal with now? *Sigh of relief*

I’ll never know. But what I do know is how it feels to make a decision that I believe in wholeheartedly and yet, feel as though I’m being devalued and penalized for it. But, there was a potential way out and I had to weigh my options carefully.

Marriage or money … it shouldn’t need to be such a stark choice. But it was, and even though you know what I decided, stick around for my next post to find out how I got there.

Read this next: A SILVER DOLLAR FOR DISABLED MARRIAGE, PART TWO: HOW TO HAVE YOUR COMMON-LAW CAKE AND EAT IT TOO [BUT WHY I DIDN’T]

A SILVER DOLLAR FOR DISABLED MARRIAGE, PART THREE: MOTHER MINISTRY, HER CHILDREN, AND THEIR CO-DEPENDENT RELATIONSHIP

Please read A SILVER DOLLAR FOR DISABLED MARRIAGE, PART TWO: HOW TO HAVE YOUR COMMON-LAW CAKE AND EAT IT TOO [BUT WHY I DIDN’T] before continuing.

After a lengthy process of phone calls, office visits and mountains of paperwork, the drama of getting married in the eyes of the Ministry was complete. My surname was changed to match my husband’s, and he was added to my profile. We received reimbursement for our security deposit since it put us in “financial stress.” And, to our great surprise and utter relief, we also received a month of back payments to account for our substantial increase in rent.

My husband rested his head on my shoulder and we both let out deep sighs of relief. With a move, a possible job change, bills to pay, and dreams we want to fulfill as a newlywed couple, it’s reassuring to know we can make this month’s rent.

And yet, it grates under my skin the fact that working a full-time job at minimum wage, I would earn more money than what the Ministry provides to disabled people on permanent support. And with minimum wage set to increase, the difference is even more distinct. Yet, in a society that is still glaringly discriminatory against people with disabilities, finding work with which to support myself and my husband is a prospect I’ve grown bitter about—I can’t dare to hope for it because I know I’ll be disappointed yet again.

So I go back to the Ministry, month after month:

  • Yes, I am still in need of support.
  • Yes, I am still searching for employment.

It isn’t dissimilar to a parent-child dynamic in my mind:

A child is growing up, eager to spread their wings and fend for themselves in the world. Follow your dreams, fall on your face, and get back up again. It’s the only way you learn. And the cycle repeats itself over and over again until life itself is over.

But sometimes, parents don’t want to let go. They can’t let go. They know the thirst for freedom and independence their child has—it’s the same freedom they chased when they were young—but now, on the other side, it’s hard to let go and grant the independence that will transition their child from a dependent youth into a well-rounded, self-sufficient adult. And the struggle persists between parent and child, a struggle for freedom, control, independence and ultimately, life itself.

Okay, so it’s a flawed example. For starters, unlike the Ministry, parents usually want the best for their children even when it’s difficult. And though I’m speaking about financial dependence and not emotional or relational control in a familial context, my point remains: Children want to be set free, to experiment, fail, learn, grow, and not be under their parents’ authority.

And that is the sum of what I long for as a child of Mother Ministry. But to my chagrin, I’m dependent on her support to do that.

But I long to be free of the Ministry’s grasp, not to be dependent on the money that drops into my bank account every month which for years, has been my only means of survival. And even though I am married now, we are still dependent on it, as rent has increased, utilities have increased and the cost of a household of two costs more than we expected. In short, we need the Ministry’s money to make it.

But I long to claw my way out of the government’s hold, to follow my dreams, fall on my face and get back up again… Just like everyone else. I don’t want to need their support. I want to be a self-sufficient adult, earning my own money to put food on the table for my husband and I to enjoy together each night. I want to work and be productive, and believe that the work I do is worthy of monetary compensation, and feel a camaraderie with the majority of the world who go to work, earn a paycheck and come home, knowing that they worked for it. I want to use the drive and ethics and principles that my parents taught me, and that I want to pass down to my own kids.

They say not to bite the hand that feeds you. But whether I like it or not, I need the sustenance the government offers to make it. And don’t think I’m not grateful. But I’m despairing of the relationship that leaves me stuck, reliant, but unable to escape.

All right, so I won’t bite. But what did a nibble hurt anyone?

Read this next: A SILVER DOLLAR FOR DISABLED MARRIAGE, PART FOUR: YOU SAY ENTITLED, I SAY EQUALITY

A SILVER DOLLAR FOR DISABLED MARRIAGE, PART TWO: HOW TO HAVE YOUR COMMON-LAW CAKE AND EAT IT TOO [BUT WHY I DIDN’T]

Please read A SILVER DOLLAR FOR DISABLED MARRIAGE, PART ONE: WHEN I SAID I DO, THE GOVERNMENT SAID WE DON’T HAVE TO ANYMORE before continuing.

I got married.

And with that, my husband and I prepared for a unique financial situation—the inevitable loss of my disability income. But, there was a possible escape, a way to have my cake [ahem, income] and eat it, too.

Enter common-law relationships.


I grew up in a solid Christian home and as an adult, I still choose to hold to those values and beliefs. And I have always dreamed of getting married and having a godly, Christ-centered marriage. But by the time my husband and I met, it was clear that we had to make a choice between my financial stability and my longing for a godly [and legal] marriage. And I wasn’t the first to face this dilemma.

In British Columbia, the Ministry slashes a disabled person’s disability income once they get married. Because, as we all know, disabled people marry rich, financially secure partners with no money woes or debt to pay off, so it’s totally fine to cut back one partner’s entire income once they say “I do.”

Exaggerated? Maybe. But it’s sure how it feels, considering that is the choice my husband and I faced and now, the consequences we live with.

Let’s take a moment and refresh our memories, shall we?
As a married couple, both partners have to claim every dollar made between them, and each dollar claimed is a dollar less that can be received through monthly disability support once the income threshold for a couple [$18,000] is reached.

However, there is one loophole one can jump through in order to keep both their disability income and a shared life with their partner—living common-law. Many disabled British Columbians are opting for this option rather than legal marriage because as stated, it allows them to live with their partner and keep receiving support payments, which is often that partner’s only means of income.

My husband and I wanted a legal, on-paper, out-loud, God-honouring marriage. But that isn’t to say we didn’t seriously consider foregoing the tradition and simply moving in together and beginning our lives together without the fanfare.

Financial success isn’t everything. But being financially stable is not something to be dismissed, and it has always been a goal for my marriage. And we knew what we were up against: Being disabled is expensive. Caring for a service animal is expensive. And finding a job to pay for these expenses is next to impossible, since too many employers are unwilling to hire people with disabilities in favour of their convenience. Living common-law would at least let me share a home and a life with my partner while contributing to our financial future, whereas legal marriage would ensure a regress in our goals and a slap in my face for doing the right thing.

Now, being married and living with the aftereffects of that choice, I do have to say that I do not regret it. My faith and the values I glean from it are more important. But admittedly, it hurts, knowing that I can’t contribute equally to our financial future, that what I can contribute will be lost in a few months’ time, and that we have to have a “Scary Fund” to keep us afloat when the months without my income arrive.

But this is how it is with the Ministry every time I make a call, go to the office, or claim my husband’s and my income on our monthly report. It’s a slap in the face for doing the right thing, both legally and biblically. I did not hide my marriage nor skirt around it to keep my income, but in following their policies and procedures, I lose my income.

Why?

Because the government system in place to provide for people like me makes us choose between a loving relationship and financial security.

Because God knows, we don’t deserve both.

Read this next: A SILVER DOLLAR FOR DISABLED MARRIAGE, PART THREE: MOTHER MINISTRY, HER CHILDREN, AND THEIR CO-DEPENDENT RELATIONSHIP

A WOMAN SAID SHE WOULD HAVE HAD AN ABORTION IF SHE KNEW HER DAUGHTER WOULD BE BLIND — A MINI MEMOIR

Disclaimer: This story deals with the subject of abortion. There is no explicit or graphic content, but if reading about abortion is difficult or triggering for you, I’d encourage you to think carefully about whether you want to continue reading or choose something else that I’ve written.
This is a true story that happened while I was in my second year of university. By telling this story, I am speaking up for the unborn children whose lives are ended due to disability. I am not seeking to debate or argue, so please leave such comments out of the comment section. Thank you.


My heart pounds and the tears sting my eyes. My partner reaches for me and I collapse into him. The room is quiet as the other pro-life club members look on in stunned silence, watching for my reaction. But I can’t react yet. I can only hold on to my partner for dear life. Life that had unknowingly hung in the balance for a girl just like me.

I meet her on the way to my health class as I crunch the leaves with a childlike joy. Upon seeing my white cane, she says, “I have a blind daughter. Can I ask you a question?”

“Absolutely! I’m Rhianna,” I say, offering her my hand.

“My daughter is only nine now, but I want her to have a good education. Seeing you here, I presume it works, but I don’t know how. Will she be able to do university?” She sounds both hopeful and apprehensive.

I want to hug her. She doesn’t know the ins and outs of post-secondary education with a disability, but who does until they’re faced with it head-on? I’m just so happy that she’s taking the time to find out.

We stand on the sidewalk, students bustling past as I detail my university experience — how I receive electronic textbooks, the accommodations provided for students for disabilities and the support offered by the Disability Resource Center on campus.

“Thank you,” she says, a genuine relief in her voice.

“No problem. Happy to help.” I say, and I run to my kinesiology lecture for which I am now almost late.

An hour later, in the pro-life club meeting, I excitedly relay my conversation with the woman with the blind daughter. “She doesn’t know much about blindness, but she’s determined to learn what she needs to for her daughter,” I say.

It makes me think of my parents, not knowing anything of disability until their four-year-old daughter gets diagnosed with bilateral eye cancer and then all are thrust into this new, unknown world. And with everything new and unfamiliar facing their family, they did the best they could—which was pretty great. I smile. My parents are awesome.

Valerie enters the room with a summary of her conversations around campus about the student body’s perspectives on the pro-life/pro-choice debate.

“I talked to this woman who has a blind daughter,” she says.

“I met her,” I say. “We had such a good conversation.”

“She told me that if she had known her daughter would be blind, she would have had an abortion.”

The silence is like thunder, but it can’t compare to my heart. How can this be? She would have aborted her own daughter? She was so determined to give her daughter a good life, yet she would have had an abortion and taken away that life by choice? And all because she was blind?

My mind starts spinning. Would my parents have aborted me had they known I would be diagnosed with cancer and be blind for the rest of my life? I know in my heart the answer is no, but the thought makes me sick. My parents may not have made that choice, but others have, and still might.

And now, all I want to do is hold this nine-year-old girl and tell her that she is enough, that she’s loved and she will have a good life.

After the semester, I leave the pro-life club, not because my position changed but because I’m not in a place where I’m ready to have these conversations and hear someone’s brutal honesty about people’s perceptions of the value of life, and particularly, disabled lives. Because I know that woman’s view is all too common, and it won’t be the last time I hear the same sentiments.

I just hope that woman’s daughter never has to hear it, especially from her own mother.

ANNOUNCING THE AUTHORS WITH DISABILITIES SHOWCASE!

When I mentioned to a friend that I was switching from posting on the blog twice a week to every other week to try and ease my mental stress, I was met with the exact validation I needed to hear: “Balance is the key.”

But balance is a very hard thing to do well.

And while I am trying to keep to a schedule, I’ve been sidelined by other blog-related projects that have me super distracted and super excited. And one of these is ready to be announced… today!

Please welcome to the blog … The Authors with Disabilities Showcase!

July is Disability Pride Month, and though I’ve kept quiet about this specific celebration on the blog, I’ve been celebrating hard. And this online bookstore is one of the ways I am choosing to celebrate this month and all year round.

The Authors with Disabilities Showcase [AWDS], came out of a desire to showcase the talent in the disability community. A place for only us to be center stage, a place where our stories are on top. I wanted to create a space where we can go to learn, discover and connect with someone else’s story of disability, because each story is as important and unique as the person who wrote it.

I’m proud of what I’ve accomplished on this blog. No matter how many subscribers I have or how many clicks I get, I’m proud, because I’m doing what I’m so passionate about and know deep-down that it’s what I need to do. But I’m just as proud of every other person with a disability out there who has told their story and is working to create a better world for us all.

That’s whose stories you can read here. And I sincerely hope that you do take some time to browse the bookstore and find something to read. You never know what difference it could make or what friend you could find in these pages.

Check it out here! And don’t forget to check back frequently as I’ll be continually adding to the collection.

Happy reading!

ARE YOU ABLEIST? LET’S FIND OUT

Ableism in its simplest form, is discrimination toward disabled people. But it encompasses so much more than what you might assume. The belief and treatment of disabled people as “less than” is so deeply engrained in our culture that it can be hard to recognize ableism in our daily lives, which can also make it frighteningly easy to slip into.

Even disabled people can be unknowingly ableist. Over the last several months, I’ve come to realize that so much of my language and actions are ableist, and I didn’t know. But now that I do, I’m working on changing them.

But how do we know if we are using ableist language or creating environments that perpetuate ableism? To answer this question, I am not relying on my own perspective or experience, but on the collective knowledge of the greater disability community.

This post, as you’ll realize if you click over to this wonderful resource by Access Living is my primary reference for information on the basics of ableism. I’m no authority–I won’t try to reinvent the wheel. But they are by no means the only one. So, just as I will, I encourage you to continue to research, learn and grow in order to stand up against ableism. Please note, that as I share portions from the Access Living website, I may summarize, shorten or omit certain pieces for brevity’s sake.

Ableism: In General

Let’s start with a few of the more general ways in which we as a society can, are, and continue to be ableist. Let’s take a look:

  • Lack of compliance with disability rights laws
  • Segregating students with disabilities into separate schools
  • The use of restraint or seclusion as a means of controlling students with disabilities
  • Failing to incorporate accessibility into building design plans
  • Building inaccessible websites
  • The assumption that people with disabilities want or need to be “fixed”
  • Using disability as a punchline
  • Refusing to provide reasonable accommodations
  • The eugenics movement of the early 1900s
  • The mass murder of disabled people in Nazi Germany

Ableism: In the Every Day

If you look at that list and think “but I haven’t done any of that,” you may be right. Ableism is often unintentional. But even unintentional ableism is still harmful to the disabled community and to our fight for equality. That’s precisely why I’m drawing attention to it in this way, because we can all do better, and need to do better. But we can’t until we know where we’ve gone wrong. So please allow me to share with you some further ways that we as a society have practiced ableism. And if you see yourself on this list, you’re not alone–I do, too.

  • Choosing an inaccessible venue for an event, therefore excluding disabled participants
  • Using someone else’s mobility device as a hand or foot rest
  • Framing disability as either tragic or inspirational in news stories, movies, and other forms of media
  • Casting a non-disabled actor to play a disabled character in entertainment
  • Making a movie that doesn’t have audio description or closed captioning
  • Using the accessible bathroom stall when you are able to use the non-accessible stall without pain or risk of injury
  • Talking to a person with a disability like they are a child, talking about them instead of directly to them, or speaking for them
  • Asking invasive questions about the medical history of someone with a disability
  • Assuming people have to have a visible disability to be disabled
  • Questioning if someone is “actually” disabled, or “how” disabled they are
  • Asking, “How did you become disabled?”

Ableism: Micro-Aggressions

Micro-aggression is a term I only heard after joining the broader disability space on social media, and what it refers to explains so much of my past that I hadn’t had words to articulate before.

“Micro-aggressions are everyday verbal or behavioral expressions that communicate a negative slight or insult” in reference to a person’s disability. And it’s in this form that I’ve been the most guilty, and where I’m working on change. The words we use have so much power, and I don’t ever want my words to be used as weapons or instruments of ableism. There are more–oh so many more–examples of ableist micro-aggressions, but I’ll share with you this brief list which we can use as a springboard for further change.

  • “That’s so lame.”
  • “You are so retarded.”
  • “That guy is crazy.”
  • “You’re acting so bi-polar today.”
  • “Are you off your meds?”
  • “It’s like the blind leading the blind.”
  • “My ideas fell on deaf ears.”
  • “She’s such a psycho.”
  • “I’m super OCD about how I clean my apartment.”
  • “I don’t even think of you as disabled.”

How Can We Get Better?

All is not lost. It’s abysmal reading through only SOME of the ways that our world has been and continues to prcipitate ableism against people with disabilities. But there are things that we can do. There are ways to change and become better allies, fellow humans and let disabled people know how valuable and worthy they are. Here are just a few:

  • Believe people when they disclose a disability
  • Don’t accuse people of faking their disability
  • Listen to people when they request an accommodation
  • Don’t assume you know what someone needs
  • Never touch a person with a disability or their mobility equipment without consent
  • Keep invasive questions to yourself
  • Don’t speak on behalf of someone with a disability unless they explicitly ask you to
  • Talk about disability with children and young people
  • Incorporate accessibility into your event planning

Ableism is like anything else–something that needs to change but can only be done once we know how to change and are willing to put in the effort to make it happen.

What forms of ableism have you experienced? Let me know in the comments so we can find ways to ensure it never happens again.

Credit:

Access Living. Ableism 101 – What is Ableism? What Does it Look Like?

ASKING “WHAT WOULD YOUR LIFE BE LIKE IF YOU WEREN’T DISABLED” ISN’T BEING CURIOUS, IT’S ABLEIST

It’s always puzzled me, when watching interviews with artists and musicians who’ve made it big in the industry, that almost without fail, the interviewer asks a question along the lines of, “What would you do if you hadn’t pursued music?”

I understand that the underlying intent of the question is a curiosity about the artist’s other interests. After all, not everyone who pursues music makes it to a level where they can rely on it to pay their bills. Most creatives have full-time jobs, or several, with their creative passion as a side hustle or hobby.

But whenever this question arises, a lump forms in my stomach, and only recently, have I begun to realize why.

As a disabled woman, I’ve been asked a similar question but with a completely different underlying message.

“So Rhianna, what do you think your life would be like if you weren’t blind?”

For some, it may be simple curiosity. Maybe, if I hadn’t become blind, I’d be an airline pilot, something I am unequivocally unable to do, and that’s all they’re after.

But, there’s an hidden ableism in this question that even I didn’t realize for years, and it needs to stop.

Why are you asking me about what my life would be like without a disability? I am disabled, and unlike pursuing a career in the music industry, my disability wasn’t a choice. What good does it do to play the what-if game about my life now? — I can’t change it. And in truth, I wouldn’t change it even if I had the choice.

Is my disabled life that sad or pitiable that you need to imagine it, able-bodied and “normal” to cope? Are you really going to wallow in the “what might have been” pity pool?

These mindsets don’t do anyone good, but especially not for the disabled person for whose life you’re talking about like nothing more than a hypothetical rather than a human being. Our lives aren’t a guessing game, or a puzzle that’s missing a piece that you need to find so we’ll be whole again. You don’t need to feel sadness at what might have been if we weren’t disabled.

Because being disabled isn’t something to be sad about or pitied, and it isn’t something anyone needs to regret. You don’t need to dwell on the past in a vain hope to offer sympathy; all it does is tell me that you don’t see the value of my disabled body the same way I do.

And that’s what makes me sad.

I’m not sad that I’m disabled. I love my disabled self, because it’s who I am and life is only good when you accept yourself for who you are and who God created you to be.

So, before you ask your disabled friend what they imagine their life would be like if they weren’t disabled, do them a favour and don’t. Move on from the what ifs and might-have-beens, and accept that their life is just as valuable and fulfilling as anyone’s. And pardon my bluntness, but it’d be a lot easier to live like that without having to fight these ableist mindsets that are far, far too prevalent in our society.

Be part of the solution, and cut this question from your conversations with disabled people. On behalf of the 25% of the population, I thank you.

MY BLIND GIRL ESSENTIALS LIST

If writing is like my Daddy’s homemade pancakes for Sunday dinner, making lists are the maple syrup I drown them in.

I make lists for everything–to-do lists, grocery lists, clothing inventory lists, even lists to organize my lists. Yes, I am that person. My brain thrives on it to keep me organized, and… it’s fun!

So, I thought it might be fun to share a list with you of the six things that are essential for my life as a blind woman. This is of course, not a comprehensive list and not meant to speak for all blind and visually impaired people, but these are the things that make my life a little [or a lot] easier and I cannot live without. Here we go!

I. My Guide Dog

Arguably the most important thing on an essentials list for any blind or visually impaired individual is a mobility aid. For many, this is a white cane like this one that I own from The Braille Superstore. For others, a guide dog is their aid of choice. Some rely more heavily on the assistance of others through the use of sighted guide, a technique wherein the sighted person offers guidance by having the blind individual hold their elbow. And for others still, their remaining vision is enough to see them safely about—visual impairment is a spectrum and not every person with an impairment needs a mobility aid.

In becoming blind at six, I was taught to use a white cane. I learned various techniques for maneuvering through my environments, both at school, in my neighbourhood and in the broader community. The skills one learns with a white cane are invaluable, and are necessary if, like me, you wanted to transition to working with a guide dog.

Now, I work with a guide dog, and it is only thanks to the dedication of my orientation and mobility [O&M] instructors and my own perseverance that I’m here. For me, a guide dog is undoubtedly the best decision for my mobility needs, but it is not for everyone. However, having a reliable mobility aid is non-negotiable for the safety of a blind individual.

II. My iPhone

My iPhone is an invaluable part of my life, and not merely for entertainment purposes. Sure, I play my fair share of Battleship on Blindfold Sea Battle, but it is a vital tool for my independence, safety and wellbeing.

There are several apps that I use on a daily basis to be more independent and self-sufficient and help my life to run a bit smoother on the whole. These range from apps that offer sighted assistance for varying tasks, to navigation, and apps with AI [artificial intelligence].

Here are three apps that I use daily and would be lost without:

  • Seeing AI — This app has so many features that I love. Being fully blind with no light perception, I make regular use of the Light channel which outputs a tone which increases in pitch when pointed in the direction of more light and decreases when it becomes darker. This is awesome for knowing if I’ve left my lights on by accident! This app is also how I take my own photos, as after I snap a picture, Seeing Ai describes the photo for me–for example, when taking a photo of my dog on his bed, the app has said, “A dog lying on a rug.” Seeing AI has the capability of reading product labels and pages of text, making it handy for distinguishing between food cans, boxes and packages or incoming mail. For all these features and lots more, it is on the homescreen of my phone for quick access.
  • Moovit — This is a navigation app that helps me to feel confident in planning travel on public transit independently. Enter your starting location and a destination, and the app maps out the route, including all stops and arrival/departure times. While on the bus, you can monitor which stops you are passing, making it easy and efficient to get off at the correct stop. It’s fully accessible for blind users and is my main navigation tool when out and about.
  • Microsoft SoundScape — Another navigation app, SoundScape assists me while out on a walk by calling out the names of the streets I pass and the intersections I’m approaching. It can mark locations that you travel to regularly, and will describe your immediate surrounding and any landmarks in the vicinity such as parks, schools or community buildings. This app has saved me on more than one occasion when I’ve been out walking and gotten myself turned around; I use the app’s descriptions of my location to reorient to the correct direction and continue on safely. An absolute must-have!

III. A Perkins Braille Writer

Braille is an essential part of many blind individuals’ lives. However, it may surprise you to know, and saddens me to no end, that “fewer than 10 percent of the 1.3 million people who are legally blind in the United States are braille readers.” In my life, I’ve come to adore braille, finding it absolutely essential in becoming independent. It promotes literacy skills and gives me greater access to education.

Having a way to produce braille is a very important part of my life as a blind woman. While in school, I used a Perkins braille writer like this one but only recently received one of my own through CNIB [Canadian National Institute for the Blind]. Nothing makes me quite as happy as the satisfying sound of braille being impressed onto the paper by my own fingers and then being able to instantly read pages of handwritten braille… it gives me chills.

IV. My Braille Bible

Because of my love for braille, a hard-copy, braille Bible definitely has a place on my essentials list. My first Bible was this 37-volume item produced by Lutheran Braille Workers, but after years of wear and tear and flattened dots, I now read this beautiful, hard-cover Bible in New King James translation. It’s big, inconvenient to store and nearly impossible to take along outside the house, but I find it easier and more enjoyable to read in this fashion rather than simply listening on audio–it’s a more immersive experience and something I wouldn’t trade for the world.

V. Tactile Dots

While seemingly small, tactile dots play a significant role in my day to day life. These dots, varying in their size, texture and shape, are used in a multitude of ways. From marking the buttons on my microwave, to the temperature controls on my oven, to the cycles of my washer and dryer, these dots are invaluable. I’ve found them at stores dedicated to adaptive equipment for the blind, or simply at the local dollar store. They needn’t be anything fancy, but without them, I’d be lost and much more dependent than I like to be.

VI. Melatonin

Melatonin is a hormone produced in the brain which helps to regulate the wake-and-sleep cycle. Because light intake is directly related to melatonin production, totally blind individuals like myself often struggle with keeping a steady circadian rhythm. Struggling with sleep as a preteen, my ophthalmologist recommended I take a melatonin supplement each night to help keep my sleep pattern on track, and I’ve taken it every night since.

As a teenager, I came close to having Non-24-Hour Sleep Wake Disorder, a condition that “causes sleep and wake times to get pushed progressively earlier or later, usually by one or two hours at a time. Over days or weeks, the circadian rhythm becomes desynchronized from regular daylight hours.” It’s a very disruptive sleep disorder and taking melatonin nightly is how I’ve maintained a sleep schedule which keeps me functioning at my best. Though melatonin affects every person differently, I’ve found absolutely essential to my health and wellbeing, and I’m lost without it. I personally recommend Nature’s Harmony, though keep in mind that I speak only from personal experience and have no medical background. This is merely what works best for me.

There you have it, my blind girl essentials list! I hope you had fun reading, because believe me, I had more fun than you’d think writing this list for you!

So, what’s on your essentials list? Let me know in the comments.

DISABILITY IS ABOUT PEOPLE, NOT POLITICS

My high school history teacher said there would come a time that I’d need to understand politics. And although I know bits and pieces of governmental bodies and systems, I can’t participate in dinner table discussions or understand news articles in a way I always hoped to. I want to learn more.

Now, thanks to Bill C-22, I have a reason to.

In its own words, C-22, called the Canada Disability Benefit Act, is “An Act to reduce poverty and to support the financial security of persons with disabilities by establishing the Canada disability benefit and making a consequential amendment to the Income Tax Act.” In plain words, this is what disabled Canadians have been fighting for, and even though it’s on the political radar with its second reading earlier this week, no one knows if it will even happen.

I can’t explain the details of C-22. I’m still learning about this myself even as I’m writing about it now. Nonetheless, I felt it was important to speak up, because this is an issue that directly impacts my life as a disabled person, and so many more lives.

Recently, I’ve been researching the statistics regarding blindness in Canada, and I came upon a list of such statistics from the Canadian National Institute for the Blind [CNIB]. Here, they list the numbers of Canadians living with sight loss in each province and territory. If you will, take a look through this list and I’ll see you in a minute.

  • Alberta: 160,000
  • British Columbia: 252,000
  • Manitoba: 57,000
  • New Brunswick: 37,750
  • Newfoundland and Labrador: 21,700
  • Nova Scotia: 49,500
  • Ontario: 681,000
  • Prince Edward island: 6,250
  • Quebec: 205,900
  • Saskatchewan: 43,000
  • Northwest Territories: 1,220
  • Nunavut: 1,280
  • Yukon: 1,400

A significant portion of the population, would you not agree?

However, this list doesn’t account for Canadians living with the myriad of other disabilities, physical, mental, emotional and invisible. Can you imagine what the number is? It’s 22%, or 6.2 million over the age of 15.

That’s almost one quarter of the Canadian population. And what is being done to support those people?

My people.

“Oh but Rhianna, didn’t you get a Covid-19 benefit?”

You mean the $600 one-time payment that we received, when able-bodied, working Canadians received $2,000? Yes, yes we did. Thanks government for covering less than half of my rent for one month.

And let’s not ignore rising costs due to inflation, and the income PWDs [persons with disabilities] receive from the Ministry that don’t account for this, and already keep disabled people below the poverty level. If you want to read a more detailed account of how the Ministry of Social Development and Poverty Reduction handles income for its disabled citizens, particularly after marriage, you might want to check out my four-part series here.

Am I over reacting? Am I making a mountain out of a molehill? [Whatever a molehill is… is it actually a hill where moles live? Someone tell me, I need to know!]

I don’t think so. Please let me offer another perspective from fellow disability advocates regarding C-22, the response from the Canadian government, and the heartbreaking outcry of disabled Canadians who just want to know that they are valued and be treated like equal citizens.
As a disclaimer, yes, I retweeted these posts, but that does not mean I take responsibility for the exact wording or the messages of other tweets on these accounts.

This is not about politics, elections or legalities. It’s about people. And it’s about time we start seeing it that way and treat each citizen like the equal, valuable member of society they are.

DISABLED PEOPLE AREN’T MADE OF SUGAR — WE WON’T MELT IN YOUR PRAISE

Raise your hand if you’ve ever been told, “You’re not made of sugar, you won’t melt” and sent out into the pouring rain.
I have… looking at you, Mama! But you know what? Cover your ears Mom… but she was right. We won’t melt. I have never once melted from excessive moisture or soaked-sock syndrome.

The same goes for people with disabilities and the praise we often receive for just… living.

I’m sorry to burst your bubble, able-bodied reader of mine, but compliments regarding a disabled person’s ability to carry out simple daily living tasks are not flattering; they’re belittling.

In my eighteen years of blindness, I’ve been praised for almost everything. Some of the more notable examples are being praised for my ability to walk up a set of stairs, knowing the names of the streets in my neighbourhood and being capable of using a microwave without assistance, and all of these as a twenty-something woman. So yes, I am referring to praise for the simple acts of living a normal life—cooking, taking transit, getting dressed, putting on make up, using the Internet, etc. Think of something normal that able-bodied people wouldn’t think twice about and I can bet you that we’ve been praised for it.

Let me make this clear:
These are not compliments.

This is empty praise. It’s meant to bolster our confidence and flatter, to encourage and give us a pat on the back. We’re supposed to be honoured, to feel grateful and flattered that you noticed our achievements. So often, I hear that the able-bodied person is just being nice and that they have the best intentions with these comments, which may be true; I’m not the judge of someone else’s motive.

But when one of these “compliments” comes my way, I feel a lot of things… and flattered is at the bottom of the list.
You need to know the truth.

I feel small.

I feel patronized.

I fear that everything I do will always be viewed through the lens of my disability and what able-bodied society deems to be praise-worthy and what isn’t.

And a question always arises that I’ve never found an answer for: Do people truly believe that my life is so bad that I need the simplest things to be celebrated to make it worthwhile?

But let’s take a step back for a minute and get comfy. It’s story time!

THE ONE WHO WAS AMAZED

I met Mac in the summer of 2020 when I plucked up my extrovert courage and walked into yet another young adults group at a local church. My friend and I had been searching for a community like this for a few months and I was getting utterly exhausted. The emotional strain of putting myself out there, enduring not only the standard small talk of a new social circle but the inevitable questions about my blindness and my guide dog that I knew would come was wearing me out.

The first meeting went very well without incident, and the second was encouraging. I got the questions about how much vision I had and how long I’d had my pup, but those were to be expected. I was starting to hope that I was becoming more part of the group and less of the blind girl.
Until the third week when Mac walked up to introduce himself. And it wasn’t long until it started… and wouldn’t stop.

Mac: So, you can use a microwave?
Rhi: Oh for sure! I put tactile dots on the buttons so I can tell what’s what, and from there, it’s easy. I do the same thing for my oven and my other kitchen appliances.
Mac: So, wait. You can cook?
Rhi: Totally, I love cooking. You just have to make some adaptations and then blind people can totally do it, just like everyone else.
Mac: Wow… just, wow. That’s so amazing!

No matter how I tried to redirect our conversation to something other than my disability, Mac steered us right back. My best friend, who witnessed the exchange, described his expression to me later as “a faraway, dazed expression of pure awe and amazement.” Needless to say, when we got home that night, I needed to vent a little steam.

I was the blind girl again.
Maybe that’s all I was.

I was more than my blindness, wasn’t I? That’s what my family said. That’s what my therapist said. That’s what God said… right? I was a daughter, a friend, writer, and lover of espresso milkshakes. That counted for something, didn’t it?

But when none of the rest of who I was mattered to Mac, I couldn’t help but question what I’d been taught about myself.

What Mac didn’t know was that just a few hours earlier that afternoon, I had sat on my couch, writing out a list of posts for my new blog. “I’m going to do it,” I told my guide dog, Cricket. “I don’t care if they only know me as the blind girl. I’m going to start a blog and do what I love.” The peace that I felt was indescribable—it was like coming home.

I would write, no matter what.

But when I met Mac, my resolve was completely undone. If I was only ever going to be seen as the blind girl, then why write when everything I say would be filtered through my blindness? Would anything I say concerning anything outside of my disability even be heard?

My peace was stolen from me. And I watched it go.

Trade in Your Praise for Puddles

What I should have done is tell Mac what I’m about to tell you:

Stop! And just listen.

My blindness has shaped me in more ways than I even realize today. It’s a big part of my story and a part that I will never deny or diminish. Jennifer Rothschild said: “My blindness doesn’t define me. It refines me.” [My apologies, I couldn’t find the source of this quote as I don’t have access to all her books in accessible formats. Remind me to rant about that later].
My blindness doesn’t define me, but it refines me. I just love that. Don’t you?

But when I, as a disabled person, receive compliments for doing the things I need to do to live, it becomes the thing that defines me. My disability becomes the central force around which my existence revolves.

That’s not how I want to live.
But you’ll have to help me.

Stop paying me compliments for living in spite of my blindness. I do not cope with my blindness. I do not suffer from my blindness.

I am not my blindness.

Will you help me?

Will you help us?

I know that you mean well. But it isn’t enough. Stop and look. See us. See us for who we are and not what our bodies can and can’t do. Stop praising us for things that you wouldn’t compliment your fellow able-bodied comrade for, and look deeper. We’re human beings with stories of our own to share and voices to tell them.

So rather than expecting us to melt beneath the warmth of your praise, just take our hands and jump in the puddles with us instead.

Come on, I can’t be the only 24-year-old who still does that, right?

BREAKING FREEDOM — THE AIRLINE BROKE HER WHEELCHAIR [AND THOUSANDS MORE]

If once is an accident, twice is a coincidence, and three times is a pattern, what do we say after the 15,000th time? It’s high time many airline companies answer that question, especially in regards to the countless wheelchairs and mobility scooters that have been broken, damaged, lost or stolen on their watch, and the disabled people that suffer the consequences.

Emily Ladau is a disability rights activist, author of Demystifying Disability, and a wheelchair user. On January 25, 2023, she shared a video entitled, “Flying Has Become Hell for Passengers with Wheelchairs” on her Facebook page, which documented how a typical flight plays out for her as a wheelchair user. As more than 15,000 wheelchairs have been broken, damaged or lost since reporting became mandatory in 2018, Emily knew it would inevitably happen to her.

It did. And now, more than a month after the airline damaged her wheelchair, it is still not fixed and is being held together by duct tape.

Wheelchairs are more than a mobility tool. They are freedom, independence, and as one woman so aptly put it: “It’s like breaking our legs” when they get damaged.

It’s time to stop the discrimination and the mistreatment of disabled people. It’s time we begin treating them and their freedom-giving equipment with the respect and care they deserve.

I encourage you to watch the video, share it with your family and friends, and join in the fight to end this abhorrent discrimination. It’s about time.

Don’t you agree?

You can buy Emily’s book, Demystifying Disability here.

GUEST POST — AN OPEN LETTER TO NEW DOG GUIDE USERS

I’m so excited to have my dear friend and fellow disability blogger, Anneliese, once more grace my blog with her wonderful, wordly presence. Anneliese is many things–many wonderful, wonderful things–but today, she brings her experience and wisdom as a two-time guide dog handler to the blog, and I’m so happy to share her perspective with you!

This post is part of a blog swap. Anneliese and I are each writing a post about advice we’d give to new guide dog handlers and publishing it on the other’s blog as a way to build community and share different perspectives. You can read my post on her blog and guess what… it’s another list!

Now, onto the post!


Dear future leash holders,

I hope you’re giddy. I could hardly keep my feet on the ground when I got the call. I hope you’re starry-eyed, that you see potential magic in every imagined future. Whether this has been a childhood dream come true, or a joyful consolation for a midlife complication, you’re at a very important threshold over which you won’t step alone. Your two feet will be joined by four paws, and so the journey begins.

It was 2009 when I began this journey, and that’s why I’m writing to you now. I’ve been around a few blocks with a couple of different dogs, and I’d like to share with you some wisdom I’ve tripped over along the way.

I thought about trying to organize this letter into something trendy like “Three Life Hacks for Guide Dog Users.” But I kept coming back to a single foundational principle: knowledge is power.

Scientia est Potentia

You’re going to receive several weeks of formal education. You’ll learn about laws and guidelines, and hear lessons presented as rules and stories meant to teach morals. They’re all very valuable, but they are just the beginning of your canine education. And, to be frank, not much of a beginning. There’s so much more to learn!

Food, grooming, discipline, fears, toys, social skills…you’ll learn about them all, and more. But it will merely be a vocabulary with which to frame more and more nuanced questions as your experiences and needs dictate. You must not stop learning. Not ever.

Your instructors will most likely tell you, quite honestly, that they can’t prepare you for every situation. But I doubt they’ll encourage you to do your own research beyond finding a local vet. They’ve been training dogs and users for a long time, so they think they’re pretty good at what they do.

They are, of course. But what they do isn’t what you do. They train dogs, and train users. You LIVE.

Living is different than teaching.

And so you must learn. You must learn, and keep learning. With every new dog you’ll live differently, and so you must continue to learn. Learn from other users, from blogs and books and podcasts. Learn from instructors and YouTube experts. Learn from your own instincts, and learn from your dog.

Knowledge is power. It’s the power to say “no,” the power to decide for yourself, the power to recover from mistakes and turn them into triumphs.

It takes power to say “no.”

No, others may not interfere with how you work your dog.

No, others may not take up your time and energy simply because you dared to bring a dog out in public.

No, that activity isn’t suitable for a dog guide, even if it is legal.

No, you don’t need to feel guilty for saying “no.” You know why these “no’s” are important, what the cost of ignoring them are, and how to execute them properly.

It takes power to decide.

In a world of hyper-availability we are inundated with advice and choices from every possible channel. Your school may provide you with a set of recommendations for how to find a vet, what food to give your dog, how often to groom, but doggy bodies are as varied as human bodies. Their minds and experiences, your environment and finances, and a hundred other variables all add up to this: what you need might change.

I’ve gone through half a dozen types of food, three vets, and a revolving door of treats and training techniques trying to meet my dogs’ needs. Between allergies, injuries, career and house changes, and the natural progression of a dog’s life, I’ve had to make an endless series of decisions I didn’t expect when my instructors gave me their formula for dog guide success.

I learned from each decision, but each decision required the will to deviate from that formula. I needed to know I was making the right decision. SO I learned, and then I chose. You can, and will, do the same. Your decisions will rest on the foundation of what you know, so build it strong.

Power of the Expert

Power is a hot topic these days. It seems people are obsessed with how much power they have in their personal lives, social lives, professional lives, in politics and finance. They’re even more obsessed with how much power they don’t have, and how much more power other people might have.

Whether your disability has been a life-long companion or a new acquisition, you’re likely very aware of the fact that people who can see seem to wield a great deal more social, economic, political, and personal power than you. This can be frustrating, limiting, and even dangerous at times. It’s probably one of the reasons you decided to ditch your cane in favor of a dog guide. I certainly preferred being “The girl with the German shepherd” to “the skinny white chick with the flimsy cane” walking around my college campus.

Social psychologists who study power have categorized it into several types: reverent (sometimes called referent), assigned, legitimate power, expert power, and so forth. What the instructors and trainers at your dog’s school have is expert power. Those with expert power have specialized knowledge about a particular subject that allows them to solve problems important to others.

But here’s the thing: those instructors got into their field of work because they are passionately dedicated to empowering you. They want to give you power. That’s why they train dogs, and give you lectures and coach you and offer support. And any rule or guideline they provide that seems constricting or less applicable to your particular situation is only given because you have less expertise than them.

The true realization of their dream, empowering blind people, would be for you to take the expertise they poured into you and multiply it so that the problematic guideline can be adapted to your unique lifestyle. Take the vocabulary they give you, enter it into Google and Amazon and Spotify and YouTube and other learning sources. And build your own expert power. These experts you learn from are giving you more than a well-trained dog and some basic education; they’re giving you the tools to learn more.

Recognizing this earlier in my dog-working career would have changed a lot about my dogs’ lifestyle, healthcare, and maybe even longevity. It would have saved me money, given me more networking and career advancement and educational opportunities. But I meekly submitted to the expert power around me, failing to realize its inspirational intent or potential.

I gained expert power out of desperation, but I won’t wait to be desperate again to follow any line of curiosity that comes my way.

Dear doggy-destined friend, remember you are at the beginning. Like a high school or college graduation, graduating with your dog guide is when real education begins.

May tails wag and treats flow freely in your future. May you stride with purpose and pleasure down busy streets and through crowded conferences. May you never walk alone again.

Love from Anneliese and Greta

GUEST POST — CHRISTIAN MOMS WANTED: BLIND NEED NOT APPLY

Having guest bloggers honour me by allowing me to post their brilliance on my blog is a dream I had as a novice blogger. And now, while I still feel entirely new at this blogging gig, I’m over the moon to welcome my first guest blogger.

I met Anneliese several months ago and found instant connection. Through our shared experiences of blindness, service dog use, and our faith in God, I’ve found a treasured friend and fellow writer. She is an artful communicator and her words have left me both awed, understood, and breathless, you know, that feeling when something punches you in the stomach because it’s so good! Yes, that’s Anneliese.

I invite you to read this post, follow her blog, Look On The Dark Side, and welcome her as she shares something intimate and rarely talked about in the disability community—the question of whether disabled women want to, or should, become mothers.

And after you’ve read her post–and ONLY after–check out the post I wrote for Anneliese’s blog where I tell the story of my first guide dog, Cricket’s retirement, From First Pet to Last Snuggle.


Greta, a chestnut-toned German shepherd, sprawls across Anneliese's lap. She and Greta grin as Anneliese appears to whisper something in Greta's fuzzy ear.

Before I get into today’s topic I’d like to thank my hostess for lending me her platform. We’re doing a blog swap, so if you really miss her you can find her work posted on my blog at Look On The Dark Side.

I have some pretty thick mental armor. I’m pretty hard to offend, I rarely respond when insulted or patronized because of my disability because I have better things to do with my time. And for a while I thought the first time I’d experienced discrimination was a store manager yelling at me because of my service dog back in college.

Another version of this biography is that I’m naïve and didn’t realize until halfway through college that people in almost every church I’d attended or visited had been discriminating against me since I hit puberty.

I’d like to share with you my story of subtle exclusion on the basis of disability, how it affected me, and how I deal with it.

I recently read Beth Allison Barr’s controversial new book The Making of Biblical Womanhood; How the Subjugation of Women Became Gospel Truth so I can now tell you that it was the transition from medieval maidenhood to Protestant family values that produced the phenomenon of every church lady you’ve ever known asking “so what about kids? How many do you want? Have you thought about how you’re going to balance work and kids/ What kind of schooling options have you thought about?”

These questions started for most of my friends in early middle school, presented as jokes, but began to show up in earnest as we began to talk about careers and college, nearing the end of our high school years. Aunts, grandmothers, Sunday school teachers and youth leaders all had their own personal versions of the interrogation. Several of my friends complained about it a lot, but I never really understood why.

“Just tell them you’re focused on your career, or you’re not planning to have kids, or whatever,” I told them. “They’ll listen. It’s the 21st century, and our church is pretty up-to-date. It’s not like we’re in the sticks somewhere.”

They didn’t seem to grasp how easy it was to defuse the pestering, I thought.

In college I spent a lot of Sundays visiting different friends’ churches. I went with whoever would give me a ride, whoever was going “regularly” that semester, trying to find a church home. I visited SBC, UMC, PCA, PCUSA, non-denominational, Episcopalian, and a handful of others, even something called Reformed Baptist.

It was at that last church where my roommate drew my attention to something. She was angry at a woman who had spent a few minutes talking to us after the service. The woman had been talking to my roommate because they knew each other. I just hung onto the edge of the conversation, not really listening. But my roommate was angry on my behalf.

“Can you believe her?” she asked. “Does that happen to you a lot?”

“Does what happen?” I asked blankly.

“People just assuming you won’t have kids because you’re blind.”

What?

I didn’t remember any mention of my blindness coming up in my roommate’s conversation. Just like people find they can hear their names or interests in a conversation they’re not listening to, I know when people are talking about my disability even if I’m mostly ignoring them. What was she talking about?

“The way she kept asking me about boyfriends and marriage and kids and stuff, and she completely ignored you,” my roommate explained. “She wasn’t acting like you weren’t there, she said hi to you and all the niceties, invited both of us to the small group on Wednesday, and then shut you out of the kids conversation. It’s bad enough we get harassed about it the minute we start wearing bras, but it’s even worse that they just assume you won’t have them just because you’re blind!”

I’ll be honest, my first thought was “you mean people were patronizing me instead of admiring and respecting my forthright and confident attitude about my future career?” I felt like a failure because people had treated me differently, whereas previously I thought I’d won them over to my way of thinking by simply being clear about my goals in life.

But she was right; I couldn’t think of a single time anyone had asked me, except my mom. When I told Mom I had other plans for my future she said she hoped I’d change her mind, but that it was perfectly fine if I didn’t and she’d be super proud of me regardless. Thanks for that, Mom. I wish everyone had been as understanding and supportive as you. I thought they had been.

My then-future mother-in-law asked me, too. She had the same response as my mother. God bless those women!

But both those conversations stand out as the only times people asked me about having kids – well, except other women I know with disabilities. They ask, because to them it’s normal, not shocking that a disabled woman would have kids.

I’m married with no kids. My husband and I don’t plan to have them. SO why is this such a big deal? Shouldn’t I just be grateful that nobody’s judging me a feminine failure for choosing not to grand my husband an heir?

Yes, but no, not really.

I’m happy not to have to deal with it because I have plenty of other obstacles to deal with, like trying to order off menu boards, use photos I can’t see in my blog, read labels on canned food, or see arrival boards at airports. Having a disability is a lot of work.

But disrespect makes that work harder, and whether or not they meant to – I choose to believe they didn’t mean to – these women in my past who assumed I couldn’t, shouldn’t, or wouldn’t have kids because I’m blind sent out the message “you’re incapable of succeeding at biblical womanhood as we understand it.”

With the child-free movement gaining support and more egalitarian concepts of Godly womanhood seeping into the Church from all directions a man or a mother might argue that it’s not as bad as it used to be for childless women in the church. They’d be wrong. Even those who spout less Victorian beliefs about Christian femininity still instinctively behave in ways that signal a woman’s value to society is her skill at parenting.

Without this badge of honor women my age at churches avoid me. Older women attempt to mentor me as a daughter in ways they don’t other young women because if I’m not a parent I must still be a child.

To some degree this is amusing. I have a master’s, I’m a licensed counselor, a home-owner, a martial artist, and more. It feels a little like a kindly old sheepdog trying to warn the top mouser that there are rodents in the barn. But if I had a shortage of confidence in my relationship with God, it could be devastating.

I could write a book on why this concept, that disabled women are not equal in Christ because they can’t have children, is wrong and harmful, where it came from, and how to stop it. Maybe someday I will. But for now I leave you with this thought.

It is sinful – and pointless and harmful – to place limits on how we think God can use any given person.

THE CASE OF THE DISABLED CHRISTIAN, PART ONE: SHOULD WE PRAY FOR HEALING?

Let’s hit the ground running with this blog! And I’m excited to attack the most asked, and rather controversial question for most disabled people.

Do You Want to Be Healed?

While I have an easy answer to this question which I shout from the rooftops with more conviction than most people expect, I’m not going to answer it yet. I want to break down all the facets of this question first so we can understand fully what we’re asking. I think it’s much deeper than we realize. As you read, please be mindful that everything I say here is my own personal conviction and though I know many others who share my views, these are my words and not meant to represent every disabled person’s experience.

It’s Just Physical, Right?

When someone prays for my healing, they are asking for my physical disability to be restored to health. They’re asking that my blindness be taken away and that I be given sight. That seems fairly obvious, right?

Maybe. Maybe not.

In praying for any need, there is always something underlying, something which propels the prayer into action. When the Israelites asked Moses for water in the desert in Exodus 17, Moses petitioned the Lord and He provided water through the rock at Horeb. They were thirsty so they asked for water. Similarly, when the 19th-century preacher, Charles Finney prayed for rain, he prayed with expectation and with the knowledge that without it, the crops of Oberlin Ohio would die and they couldn’t care for their cattle. Their need for rain prompted a prayer, and God answered their prayer. Though prayer is first and foremost a way to be in conversation with God, to know Him, to listen, and to grow closer to Him, it’s perfectly okay to ask for what we need. Matthew 21:22 says “And whatever you ask for in prayer, you will receive, if you have faith.”

But I always wonder what drives people to pray for my healing. The most common answer I hear to this question is that they want me, the disabled person, to have a better quality of life. But stay with me here, because I want to break this down even further.

What constitutes a “good” quality of life? For some, I can imagine that it’s being financially stable. For others, having a family, or perhaps, it’s having the freedom to travel. Everyone is different—some love to be up and moving and others are perfectly content at home.

But you know what? I can do all those things, too. People who are blind can travel, raise families and be financially stable. There’s no one-size-fits-all standard for quality of life. So before presuming that a disabled person’s quality of life is somehow lessened by their disability, try something different… ask them. They may just be perfectly happy. I know I am.

There’s one more comment I’d like to make before I leave this quality-of-life discussion. In hearing this question, I can’t help but hear some underlying ableism — ableism being discrimination or prejudice against individuals with disabilities. Now, let me ask this:

What makes an able-bodied person feel that they know what’s best for a disabled person?

Please, take a minute and think that over. I don’t pretend to have an answer, and it will vary depending on who you ask. But I encourage you to spend time with that question, and if you can’t find a reason other than “I’m able-bodied and they have a disability,” then I implore you as nicely as I can: STOP!

Maybe people think our quality of life would be improved by healing since we wouldn’t be bound by hospital visits or adaptive equipment or prescription medications. We wouldn’t be limited and would be free to live as we wish. But, everyone, able-bodied or disabled, has limits. Hate to break it to you. Mine happen to be physical, and for some, they’re mental or emotional. Limits don’t inhibit freedom—they enhance it.

But Doesn’t God Want Them to Be Healed?

In the Bible, there are countless stories where Jesus heals people. The healing of the blind man in John 9, the bleeding woman in Mark 5:21-43, and even after Jesus ascended, his disciples, Peter and John healing the lame man in Acts 3. These accounts are incredible and miraculous, clearly the hand of God at work in people’s lives.

But in being told and retold these miraculous accounts of healing, I’ve grown up a little fearful of what this teaches us about people with disabilities. Our presence in the Bible is often as the recipient of the amazing grace that Jesus offers in being healed of our afflictions. If this is how we are teaching about disabled individuals in the world and particularly in church, it’s little wonder that healing is our go-to response when presented with someone like me.

“But Jesus healed the blind man,” they say. “He healed the lame, the mute, the demon-possessed. Jesus was all about healing.”

Yes! He was, and still is! You’ll never see me arguing with that. But is that the only type of healing that Jesus wants for us?

I believe Jesus came to heal us spiritually, to draw us into relationship with him. Paying for our sins by dying on the cross in our place wasn’t so that I might be physically healed, but so that I could come to him, even as a sinful person, and find healing for my soul. Does that mean that Jesus has lost interest in physical healing? Absolutely not! But I don’t believe it’s his priority, and when he chooses to heal, it’s for a purpose.

Here’s where I am going to take a gamble, and this isn’t meant to put words in anyone’s mouth. But in my heart, I do believe this is a very real part of the driving force, whether the asker knows it or not.

It creates a crisis of faith for the able-bodied believer. Jesus healed the sick and disabled. He can heal today, right now, if we pray. But when he doesn’t, or the disabled person doesn’t want to be healed… what do we do with that? How do we as believers reconcile an ever-loving God with a disability? Because, if he were truly loving and wanting the best for us, wouldn’t He heal us?

We don’t know how to hold both, our God of love who made us fearfully and wonderfully and with a purpose, and disability.

But there is a way.

Continue reading: THE CASE OF THE DISABLED CHRISTIAN, PART TWO: “ALL TO THE GLORY OF GOD.”

THE CASE OF THE DISABLED CHRISTIAN, PART TWO: “ALL TO THE GLORY OF GOD.”

NOTE: Read THE CASE OF THE DISABLED CHRISTIAN, PART ONE: SHOULD WE PRAY FOR HEALING?” here.

Do I Want to Be Healed?

THE CASE OF THE DISABLED CHRISTIAN, PART ONE: SHOULD WE PRAY FOR HEALING? In part one, I promised you an easy answer to this question, so here it is:

Do I want to be healed?

No.

I do not want to be healed. Nor do I believe that I need to be healed. For the quality of life crowd, let me assure you that while I have my struggles like everyone, I have a wonderful life, blindness and all. I live within walking distance of a gorgeous beach. I have a family that loves me unconditionally, a supportive and inclusive church community, friends that uplift and encourage me, and I have my independence. I see nothing missing from this beautiful picture.
While sitting at the beach last week with a friend, looking out at the waves, I said, “I couldn’t enjoy this any more if I were sighted.” And I meant it.

But what of my relationship with God? It hasn’t always been this way. When I first became blind, I prayed for healing. My family prayed for healing. And that wasn’t wrong. When I prayed for physical healing last, I was eighteen and sitting on the window ledge of my second-story college dorm room. I had a nudge in my heart and I listened. Maybe there’ll come a time that I’ll ask again in the future, but only if the Lord leads me to it. I choose to believe, and be content with where God has placed me in this world. And that brings me to my final thought, and the most important lesson I’ve learned.

It’s About God, Not Me

In my last post, I said that we don’t know how to hold both a loving God and a disability together.

This is how:

By realizing that having a disability changes our lives, but it doesn’t change God.

The question of whether I’m blind for the rest of my life or if God restores my sight is irrelevant to the bigger picture.
It’s about God, not me. He is still who He has always been and always will be—a God of love, grace, justice and the savior of my soul. I am here on this earth to serve and glorify God, not the other way around. By no means has this been easy, and I struggle with this truth every moment of my life; my sinful nature persuades me that I’m the center of the world and even God is subject to my wishes. I get upset when He doesn’t answer prayers the way that I think is best, and my faith wavers when I don’t feel His presence the way that I hear worship leaders and christian authors describe. But the truth doesn’t change.

God doesn’t change.

The question of healing has been one that I’ve had to grapple with for as long as I’ve been blind. People are always curious about my answer, and even more so when they hear that my answer is no. I’ve given my reasons to family, to friends and to total strangers. But it took many years, lots of tears and constant wrestling with God to come to the conclusion that I have.

If it is God’s will to heal me, then may I be healed. But it will have to come from Him, not me. My healing must be part of His plan to bring glory to Him in my life. But for now, as I write this looking out the window at the beautiful ocean, I believe strongly in my spirit that I am firmly in the center of God’s will. I can see the blessings and the growth and the beauty that my blindness has brought. And if God is using this to his glory, who am I to rob God of a way that He’s chosen to work in my life and the lives of those around me?

God is so much bigger than I can imagine, and my healing is in His hands. I Corinthians 10:31 says it well: “So, whether you eat or drink, or whatever you do, do all to the glory of God.”

“So Rhianna, can I pray for you to be healed?”

“Thanks for the thought. But no. There are other things going on right now that I’m struggling with, though. Could we pray for those? And if there’s anything that you need, I’d be happy to pray with you, too.”

HOW AN ACCESSIBLE WORLD FEELS AND WHY I’LL NEVER STOP ADVOCATING FOR ONE

In this post, I discussed why accessibility is an absolute necessity for people living with disabilities.

Today, as National Accessibility Week draws to a close, I want to highlight the personal impact accessibility has had on my life. In reading this, I hope you will take away a sense of what a lack of accessibility feels like, and resolve to join hands with your disabled friends and family to help change it.

In January of 2019, I attended class at Leader Dogs for the Blind in Rochester Hills, Michigan, to receive my first guide dog, Cricket. Classes at LDB are three and a half weeks of intensive, on-campus training. And as I was a first-time handler, never having even owned or cared for a pet dog let alone the completely new territory of one being my guide, I knew these weeks would be crucial.

Our days were spent rising at 6:30 for park time (the term LDB uses for relieving the dogs), feeding and watering our guides, and ending with the last park at 8:00. In between, were sessions both indoors and outdoors, practicing a variety of techniques on different routes in Rochester Hills and on school property. I learned how to direct Cricket safely across a busy intersection, how to navigate stores and malls, what commands Cricket was taught and how to correct him when he disobeyed. I had been sent guidework training material ahead of time which helped me prepare me for the experience, but nothing compared to the thrill and the stress of walking, hand on harness, with my guide dog independently.

It was a fast-paced time, and I got to know my three teammates Very. Well. More than once, they offered me tight hugs because I burst into frustrated tears in the middle of the mall, wondering if I would ever get the hang of guidework.

Training was exhausting, exhilarating, frustrating and empowering. I needed all the energy I could muster to make it through the experience and retain the information I learned. And I remember how it struck me upon arrival and continually throughout my stay at the school, how I was able to concentrate solely on my relationship with Cricket because of one thing.

Accessibility.

It should follow logically that, in being a school that trains both guide dogs and the handlers who receive them to be independent, Leader Dogs would be fully accessible to those with visual impairments. Yet, I still found myself awed by just how much independence they offered me.
And I realized just how much weight I’d been carrying on my own.

The example I most love to describe to my friends and family at home is the coffee machine. It sat on a table near the entrance to the RA’s office at the intersection of the Rochester and Avon hallways. And it was a popular spot. The coffee, I mean!

Beside each button was a brailled label with the name of the corresponding drink. I’m not a coffee person per se, but I made regular use of the cappuccino button! The rows of buttons and drink options seemed endless, and I wondered how long it would take me to memorize the order. But I didn’t have to.
Nor did I have to memorize where the cups, lids, sugar packets, creamers or tea bags were. Each basket that held these items were also labelled in braille and stayed in their place to the left of the coffee machine, easy to find whenever the craving struck.

I’m a coffee person, but my body doesn’t appreciate it as much. But while I was there, I visited the coffee station frequently, not only because I loved indulging in a drink that I didn’t buy often at home, but simply because I could.
I could grab a coffee whenever I wanted. Other than in my own kitchen, I’ve never experienced that anywhere. If I’m out, a sighted person is often assisting me with selecting a drink from a menu that isn’t accessible, or making it for me since I don’t know where they keep their mugs and coffee pot. Relying on others has become a norm for certain things in my life, something that I’ve resigned myself to accept.
But until I tasted this freedom, I hadn’t realized just how inaccessible, and unwilling to change, the world around me truly was. But here, I was valued, I was treated equal and meeting my needs wasn’t a nice thing to do–it was the right thing to do.

Accessibility was all over Leader Dogs for the Blind and it vibrated throughout the building and the program just how highly they prioritized it.
At the intersection between the Rochester and Avon hallways, tactile markers were set out on the floor so that I could distinguish by the texture when I was approaching the triangle. Along the hallways were handrails, and at varying intervals, my fingers would find a knob protruding from the underside of the rail. That knob was an indicator to lift my hand straight up to just above the rail where I’d find a sign with the name of the room directly across the hall from where I stood, in braille. And next to each door, there again was a sign with the room name to ensure that it was clear where you were.

In our rooms, a brailled schedule was fastened to the backside of the door, with the daily times for parking, feeding, watering and mealtimes listed for clients to check what was coming up next. Each room, and many of the common areas, were equipped with an Amazon Alexa, which made checking weather conditions, setting alarms for wake up, parking and feeding times as easy as ever. The dining room was set with several tables, with about eight or ten chairs around each for the teams and their instructors to enjoy meals together. to the back of each chair was adhered a braille number so that we could easily identify our assigned seat. I was #7.

It was completely accessible. And the freedom of it almost brought me to tears.

For a few weeks, I didn’t have to compensate for my lack of vision. I didn’t have to make justifications for the lack of accessibility all around me; “It’s too complicated, too expensive, too time-consuming, to make X-Y-Z accessible. It’s okay.” [For the record, it is not okay!] I didn’t have to ask for help nearly as often as I did at home or out in my community where things were constantly changing and making it difficult to be independent.

I was given a break. I could just be me, and I could rest. I didn’t have to work so hard just to exist. The world was finally catering to my needs rather than the other way around.

Three and a half weeks later, when I returned to Canada from training with my new, handsome, Cricket guiding me, I mourned the loss of that independence. I felt as though a part of me had been stripped and left at Leader Dogs for the Blind. I was back to the “real world,” the one in which I had to compensate for my blindness and never expect the world to meet me halfway. I was exhausted before I got off the plane.

Friends, this is why accessibility is so important. It isn’t a luxury. It isn’t disabled people being entitled or selfish or asking too much.

It’s realizing that disabled people are equal and valuable, and although our needs are unique, meeting them isn’t optional. It’s necessary to better the world and make it more inclusive for all of its people.

I WAS BULLIED FOR BEING BLIND –A MINI MEMOIR

I’m somewhere between four and six years old–no longer sighted but not quite blind–when I’m bullied for the first time. And though the details are lost to memory, the belittlement and fear has never left my body. And I know it never will.

This is that story, the moment when I first learned that I would not always be safe, protected or valued because I was disabled.


“Who am I?”

“Who am I?”

“Who am I?”

Their voices tumble over each other, the cascade of the same mocking, accusing question thundering like a waterfall in my ears. I close my eyes and try to drown it out, but I can’t.

“Who am I?”

“Who am I?”

I don’t remember how I got here. The grassy slope that inclines up to the soccer field was where I’d been rolling down gleefully–maybe not today, but I know I have before–but now, it’s my prison. I’m on my back, my feet above my head at the top of the slope, and like a sheep amongst wolves, I am in the middle of them.

Trapped.

No way to escape.

Their hands pin me to the field, their taunts unrelenting. I can’t see whose holding me down, my vision is already too blurry to make them out. They’re older kids, anyway. I’m too small to struggle, and I’d never win. But there has to be at least five or six.

“Who am I?” comes the mocking refrain. Over and over, they spit the question and laugh. Let the little blind girl figure it out.

But I don’t.

So I stay put.

I don’t know how I get free. But at some point, I’m released from their grip, able to stand and brush the grass and dirt from my shirt, and go inside. It doesn’t happen again, but it doesn’t have to–I’ll never forget.

I’M STILL BLIND WHEN THE LIGHTS ARE ON

According to medical professionals, I’m blind. My optic nerve has been removed, my hazel eyes have been hand painted and my faithful sidekick is a cuddly, golden lab guide dog. I would say I qualify as a blind girl.

I also struggle with depression and anxiety. Now, I have not been given any medical diagnoses for these. At times, this has been frustrating because there are those people who require a diagnosis before they believe it’s real. At times, it is liberating because it gives me hope that I don’t have to live within the label that so many ascribe to those who have official diagnoses.

And there is one more thing I should mention before we go any further. I am a devoted believer in Jesus Christ, and my faith has made all the difference.
But when you take my faith, blindness, depression and anxiety into one and try to reconcile them with each other, that’s where many people run into roadblocks. Especially those people in the church.

The church has been my home for my entire life and I have found much love, encouragement and compassion there. However, I know there are sadly, those within it that do not embody the deep love, encouragement and compassion that I was shown. And they, among others, are who I hope will read this.

No one would deny that I’m blind. We’ve covered this. My prostheses are enough evidence of that. But because I cannot offer physical evidence of my depression and anxiety, some would see this as evidence itself of its invalidity. And to those who doubt, I will say only one thing:
I’m still blind when the lights are on.

Within the church, I’ve encountered varying views on mental health struggles, and unfortunately, many are negative. Here are some:

  • “You must not pray hard enough.”
  • “God is a god of joy. Depression is the opposite of joy. Are you truly following God?”
  • “He can take away your anxiety. Just ask Him.”
  • “The Bible says not to worry. Having anxiety is a sin.”

To those who hold these views, I offer you this scenario:

I walk into a room and am searching for a chair I’ve been told is there. I know to look on the left side of the room, but I don’t know where along the length of the wall it will be. A stranger comes into the room behind me and seeing me slowly searching the space, exclaims: “Oh dear! You’re blind! Here, I’ll turn on the light. There, that’s better. Now you can see where the chair is.”

How silly! Turning on the light wouldn’t change a thing. My optic nerve still doesn’t connect my brain to my eye. Turning on the light doesn’t change my blindness.

But people seem to think it should change my mental health.

If one could just turn on God’s light, then their depression would disappear. If they would just pray, they wouldn’t have panic attacks.
But that is not the case. Of course there is power in prayer and it’s not wrong to pray for healing or help to cope. But prayer isn’t a machine that vomits the right answer if you pray the right prayer. It’s a way to draw closer to God and listen to what He wants to tell you.

So, maybe He won’t take away my anxiety or depression. Maybe He won’t miraculously transform my acrylic eyes into real ones. But somehow, this doesn’t come across very clear to some people in the church. Because these illnesses are of the mind, their legitimacy is often questioned. And because they can be questioned, it’s easy to point fingers and accuse those dealing with them of weak faith.

“If you could just pray more, you wouldn’t be depressed.”
“If you would just trust more, you wouldn’t have anxiety.”

But if you turn on the lights, a blind girl is still blind.
If you have faith, you can still struggle with mental health.

Even if we believe in God’s power to transform our hearts and perform miracles in our lives, it doesn’t equate to a life without hardship. I believe in Him and I’m still blind. I believe in Him and I still struggle with anxiety. Our faith in Jesus shouldn’t change because of our circumstances. But what I pray does change is the view that our circumstances should.
Though to be quite honest, I don’t care if people’s circumstances change or not. As long as their hearts do.