THERE IS NO MEANING IN DISABILITY PRIDE WITHOUT GOD

My first braille Bible came a few volumes at a time. In the first box was the Gospel of Matthew and Acts of the Apostles. As they came box by box, my Bible filled up my bookshelf and at seven years old, I could read the Word of God for myself for the first time.

It was so exciting, being able to read the Bible like my family and friends at church. I took it to Sunday School with me and was able to participate in Sword drills and follow along with the passage during the sermon. I kept a volume next to my bed, and half the shelf in my bedroom was taken up with the 37-volume Bible from Lutheran Braille Workers.

In my early twenties, I decided it was time for a new Bible, one with crisp braille dots and edges that didn’t have permanent curves from leaning against the wall by my bed. I opted for a 20-volume, hardcover Bible in the New King James Version [NKJV]. It now sits on my bookshelf, taking four cubbies to hold it all. It’s made the trek with me from my home two cities and four houses ago. It still takes up most of the bookshelf, and I still keep a volume by my bed.

It’s been with me for as long as I can remember, and so has God.

But my relationship with my braille Bible is easier to define than my relationship with God. There was a beginning, a conscious decision to open the pages and glide my fingers over the sweet dots that spelled out the story of God’s love for me. But growing up in a Christian home meant that God was in my life while I was still in the womb, and before I could say the name of God, He was a significant part of my existence. There’s never been life for me without Him. No beginning, no divide between when I knew Him and when I didn’t. Along the way, there have been landmarks in our relationship, like my baptism at 14 and my decision to attend Bible college after high school.

Receiving my braille Bibles have been landmark moments in my faith journey, too, but it’s not only because of being given the ability to read God’s Word for myself. It’s because the Bible was in braille, and for the first time, my identities as a disabled woman and a Christian came together in a real, tangible way.

The immense pride I have in my identity as a disabled woman only has meaning when taken with my pride in being a follower of Jesus Christ. I never believed they could coexist before, but not only can they, it makes my life overflow with beauty and meaning in both.

My disability is beautiful because I know that God created me this way and takes joy in me.
My faith is bolstered because of what I have endured as a disabled woman and every trial I face points back to God.

As simplistic as it may sound, the Bible sitting on my bookshelf now and the one in my childhood bedroom is how I know this is true. In one book, my disability and my God come together. It’s the only way to have full and complete meaning in both my disabled identity and my Christian identity. And I wouldn’t have it any other way.

My disability brings me closer to God, and God brings me pride in my disability.

You all know that I’m very vocal about my disability pride and a bit less so about my Christian pride. My faith journey is a very private one, and I keep it behind a curtain for only me and God to see. But every time I write about disability equality, accessibility, rights and ways to become allies of the disabled community, it stems from my love for the God who made me disabled, and beautifully so. There’s no meaning in it if God isn’t the maker and the center, and I’m thankful that He is, and will always be, there.

How does your faith impact your relationship with your disability, and vice versa? Let me know in the comments.

1 Comment

  1. A great read Rhianna, Disability and God : I agree that a disability brings us closer to God, Disability is definitely not a good thing who wants it, Nobody, But the one thing is has done for me is to “much more consistently” keep me talking to God : some whining sure, and yet I am reminded as scripture to “Give Thanks in All Situations” even for a disability, makes no sense to me yet, because God’s ways are Far above my ways, His thought Far above mine, My prayer continues to be for Wisdom that I can more and more understand God’s ways. That may not occur till I meet with Him, but I continue to hope and pray for sooner than later, either way, it is His way not mine, have a good day, talk to you soon I hope, love you guys, Uncle Ken Auntie Bev, have a coffee on us!

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